Well, things sure have been busy lately. But then life is that way for everyone it seems. If you find the secret to simplifying and slowing down, let me know!
We are very thankful that Dad now has a wheelchair that appears to fit his needs. The process took trying 3 other chairs, spending some money in vain, and the daily testing of our patience. But what matters is that Dad is safe and comfortable and that seems to be the case now. His “broda chair” is almost like a recliner/lawn chair! If anyone knows someone in need of a “Invacare Personal Back 10” for an 18” wheelchair, let me know. I have a brand new one (used 1 week) to sell!
I am never quite sure what to say when someone asked, “how’s your Dad doing?”. Compared to his condition 2 months ago, he is doing great! He is eating well, is calm most of the time and has not fallen since the first week. Compared to the man we all know and love, he is not doing too well. Communication is difficult, he needs total care, and at times the parkinsons/dementia creates uncomfortable situations. There are times when I go about my days and feel like this is our “new normal” and all is ok. And then there are times when I sit with Dad and my heart says, “this is so not normal” and it hurts.
Each day holds it’s own level of anxiety, but God never fails to provide just enough strength, hope and grace for that day. Do I wish we didn’t have to walk this road? Of course. But we know that God is in it. There have been so many blessings along the way and so many lessons God has taught us. It is comforting to know that when God sends difficulties our way, He is up to something!
One thing that is so important along this journey is to keep a sense of humor. Of course humor is something Dad is known for. The other day, Dad and I were down the hall near the nurses station and the phones were ringing and going unanswered. It was frustrating Dad. He took my hand, raised it to his ear and said “hello?”. I had to laugh out loud.
Thank you so much for your prayers each day. They are a treasured gift! Thank you as well for your calls and emails. Dad’s wall is filling up with your cards, making his room warm and cheery. I made a poster to hang on the wall above the foot of his bed. Thought you might like to see it.